If you're going
Hike 4 Hyde is set for 9 a.m.-2 p.m. Saturday at Sawnee Mountain Preserve. Advance tickets can be purchased online at www.hike4hyde.com.
An upcoming event will raise funds for research of a rare disease, but the event's namesake just thinks it's a big party.
Hike 4 Hyde, now in its third year, will be "come and go" from 9 a.m. to 2 p.m. Saturday at Sawnee Mountain Preserve.
The event is named in honor of Hyde Talbot, a 4-year-old Forsyth County resident with atypical hemolytic-uremic syndrome, more commonly known as Atypical HUS.
The disease is an extremely rare genetic mutation that affects Factor H, which helps control the immune system. It's estimated only about 300 to 600 people in the United States have the condition.
Funds raised at Hike 4 Hyde go to two organizations -- Foundation for Children with Atypical HUS, which receives 80 percent of the proceeds, and Children's Healthcare of Atlanta.
But Phyllis Talbot, Hyde's mother, said for him and his 6-year-old sister, Ruth, the event is just a big celebration.
"They think it's the world's greatest birthday party," she said. "All they know is they get to eat cotton candy all day and have fun."
Other children attending will have fun, too, Talbot said.
"There's bounce house, a big slide, face painting, nature bingo, a scavenger hunt, and a whole bunch of other kids' stuff," she said.
While the event is called a hike, she noted there is no formal trek up the mountain. However, those who do reach the top of Sawnee will get a special stamp on their event T-shirt.
Cost is $25 in advance or $30 the day of for adults, and $12 and $15 for children 12 and younger.
There is also a family price of $60 in advance or $70 on April 16, which includes two adult and two children's tickets.
There will also concessions available for purchase.
In his battle against Atypical HUS, Hyde has undergone many challenges, including kidney failure, severe high blood pressure scares, anemia and extremely low blood platelets.
For many months, he had to endure daily dialysis at home.
In February, however, he underwent a kidney transplant and began a new experimental drug therapy.
Phyllis Talbot said he's currently "doing well."
"We were going to Egleston twice a week, but now we're only going once a week," she said.
He also receives infusions of the experimental drug every other week and takes daily medications to prevent rejection of his new kidney.
"He's always felt pretty good, but now late in the day we can tell he has a ton more energy," she said.
Talbot noted that the family will get to have a first after the hike.
"That next week, we're going to the beach together for the first time," she said. "We're weren't ever able to do that before because Hyde had a port for his dialysis treatments, so he couldn't get that wet.
She said the entire family is "really excited" about both the beach trip and the hike.
Talbot said last year's event raised about $33,000 and the first year about $20,000.
"We'll be thrilled with $20,000 this year. We're happy with whatever we're able to get," she said.